Wednesday, May 7, 2008

The Spaghetti Card

When I was first diagnosed with lupus I almost subconsciously decided that I would not be a crusader for the disease, I would take my daily medication and move about my life as if I didn't have this invisible purple ribbon on my shirt. I have told very few people about my autoimmune trouble and have attempted to keep it out of my blog except for a few occasions. But as I become more aware of the difficulties I will encounter because of lupus I don't think it is such a bad idea to write about it periodically. This may in turn help someone else. I am a runner and I have lupus, when I search for runners with lupus on the internet all I find is people running FOR lupus research, not people with lupus who are running. I have, in all my searching, found one person who has lupus and runs and I am looking forward to speaking with her.

It is very frustrating to have this bizarre disease that catches me off guard constantly. I like some predictability in my life and with four kids things rarely goes as planned, throw lupus in the mix and it is an unusual treat that the day goes as planned and that I am feeling well enough to handle the challenges. So, today is one of those days where I will play the spaghetti card for dinner because my appetite is shot and my hips can't stay in one place for long. I never thought my deep freezer would be one of my best friends but it sure is turning out that way. Still, don't look for the purple ribbon next to my runner girl, look for the girl running from the purple ribbon. Yeah, you call it denial, I call it coping.

3 comments:

abby said...

Lucking fupus. Seriously.

paige said...

purple is a stupid color. run away, run away!

www.pepperpaints.com said...

You go!!! www.pepperpaints.com